I was basically asymptomatic and had no treatment for 9 years. During pregnancy, my feet were tingling and continued to do so after my baby was born. My neurologist suggested that I start injections - I was very reluctant. After much consideration, I decided to try Copaxone. I had horrible reactions to it so I was switched to Avonex. I have gone from being asymptomatic and very active to having leg weakness, loss of balance, incontinence, and general weakness since beginning treatment. Treatment was supposed to delay relapses (of which I hadn't had one in 9 years). I think I was much better off when I didn't take any medication but, of course, my neurologist disagrees that the treatment could be causing a change in my disease. I am looking for information from anyone that has also had worsening of symptoms since starting Avonex.
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Originally Posted by Becca44
ABSOLUTELY I did. Yep. Honestly, sometime within 3 weeks of starting the avonex injections, I experienced gait problems ...best described as unsteadiness. I lost confidence in my ability to balance and be agile.
I called my neuro at that time, and also my injection nurse from biogen and they both told me it was very common to experience a subtle worsening of symptoms after beginning Avonex therapy. They also told me - WITH conviction - that the worsening of symptoms was temporary and would subside. ...and it did.
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