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Old 10-14-2008, 07:30 PM
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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"MS DOESN'T CAUSE PAIN!" You've got to be joking!!!! After so many years of nerve damage (32), mine has now turned into Central Pain Syndrome where it feels like ALL the nerves in my body are on fire and that "shockey" feeling we get with the L'hermittes goes on all over!!!! WHERE'S THAT NITWIT?????? And yes, the spasticity causes pain also, especially in the back. My neuro finally prescribed carbameclezine (sp?), the generic for Tegretol, for the nerve pain. It was like a miracle -- that burning pain was actually gone! To start, it was 1/2 tablet two times a day, but after a week I was so weak, could barely stand at all. Now I just take 1/2 tab. when it's an especially bad day. Like Cherie said, the NSAIDS, narcotics, etc. don't touch that pain. I do take two Aleve in the morning since I'm so stiff from the Fibromyalgia. Can't win!!!!

The pain management docs I went to around here had no solutions other than maybe acupuncture and the other things I'd already tried. Just my luck, an acupuncture needle would hit a nerve and make things worse. Kind of strange, all this type pain started while I was on Avonex back when a nurse, etc., had to give the injections. She sure hit something in my hip one time that made me almost go through the roof!!!! OWWWWWWWWWW!!!!!!!

Are we having fun yet? Good luck Moose -- I sure hope it's something treatable and you find the right person who will LISTEN!!!
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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"Thanks for this!" says:
FranksAngel (10-14-2008), JessieSue (10-14-2008)