My niece got her bone scan results today, and the specialist was right with his diagnosis. She does have SAPHO Syndrome.

Her bone scan showed active spots in her feet, one toe, knees, elbows, shoulders, hips, pelvis and a small spot in her lower back, as well as a pretty impressive curvature of the spine..

She tells me that she's been been good up until the last few days when she ran out of her anti-inflammatory medications (Mobic), and now she's sore from the waist down and feeling very fatigued.

Neither of us know much about the condition, but she has to stay on anti-inflammatories for the next 7 weeks and then go off it the week before she goes back to the specialist for a re-assessment.

She also has a skin condition on her hands, which the doctor says is Pustulosis. This condition has only been recognised by skin specialists in the past 8 years or so, but considered to be part of the Sapho diagnosis. In her teens and twenties she also had rather nasty acne, which they now know to be part of this diagnosis. At least now the dermatologist will finally be treating it differently.

For anyone who doesn't know what Sapho Syndrome is, it's basically a chronic disorder that involves skin, bone and joints.

Included in the neme Sapho are the conditions synovitis, acne, pustulosis, and osteosis.

Treatment is usually with anti-infllammatory medicatons.