Quote:
Originally Posted by MooseasaurusRex
My heart goes out to you, Sher. I've met so many people online who have been stuck in the limbo. Some for years. I don't say this to scare you beautiful, it's just a warning to steel yourself and be ready to FIGHT BACK against whatever the docs find. My diagnosis nearly killed me. And I mean literally. Long story... you can find it in the addicts, alcoholics and rehab forum.
Politely ---or not so politely--- remind them they work for you, no number of testing or evals is too much until thay have the answer. I recomend you start a journal. To load your guns on doc appointments. And it's a great tool as well for just clearing your head, so you don't have to just write about the disease.
Almost forgot...
One big, warm, tight, hug, handshake and howdy moose-size official type welcome to the site. This place is amazing!
You are not alone.
You are one of us.
And we are here to help. |
Thanks for the advise. I have kept copies of all of my mri's and kept some notes but a journal would be more helpful. I guess I have been to laid back with the drs. I feel when I call them I am taking them away from someone else who is in more need of them. I go for massage therapy monthly to try to relax the muscles.. but that doesn't last for long. I last saw the nero in aug 2007 when the tests came back normal. I felt like a fool nothing wrong?? but still felt weak on left side. The left side seems to feel weaker now and the pain in my shoulder and neck don't seem to let up... not sure if it is the weather change or if just getting worse. Feb is not that far off. I will see him then and go from there.
thanks sherry