Hi Billye
Yes, I agree with you moving around helps and getting outside, otherwise you can get very depressed and down about the pain. I had a very bad flare yesterday and felt like no pain meds worked.
I have nerve pain in the vaginal area... doctor believes pudendal nueralgia.
In other words nerve pain coming from the pudendal nerve. I am getting an EMG test on Wednesday to give more of a diagnosis, and will go for a nerve block if need be for futher diagnosis. PN is a diagnosis of exclusion, so I just present all of my symptoms and we narrow it down. I have had chronic and unrelenting burning for 3 months now. So, I am just trying the meds to see what works for the burning. I am on Neurontin 1800mg, Elavil mostly for the pain.
You mentioned Lyrica.. what were your pain levels like with the drug? I take the Neurontin and I still have the burning, but it may not be as pronounced. I dont know if anything eliminates the pain. That is great that you found something that works more for you.
So.. it has only been a month on the drugs, i have to give them a try.