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Old 10-20-2008, 08:15 AM
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hollym hollym is offline
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Join Date: Jan 2008
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15 yr Member
hollym hollym is offline
Senior Member
hollym's Avatar
 
Join Date: Jan 2008
Posts: 1,690
15 yr Member
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All I can say is that I feel so blessed to have my neuro. He is always way behind (as in an hour or more) and he is scheduled out many months (my next appt is June 12, 2009 and that was the next avail appt when I booked it after my appt a couple weeks ago) BUT he is caring and takes all the time I need when I'm in there. He also has a wonderful nurse and assistant who handle everything in between. He will also call me on the phone if I need him and will squeeze me in the schedule if there is an urgent concern.

One of the best things he does is makes sure to rx enough of a drug. For example, my Provigil rx is written as 2 doses of 200 mg per day. He does that to make sure I can get enough with one copay even if I don't need to use that much every day. He is sensitive to the fact that things can change quickly and that it is much easier to adjust dosages if you have enough of the med on hand.

He gave me a titration schedule when I first started this and told me to adjust anywhere in between 50 mg per day up to the max of 400 mg per day. He told me to just do what I needed to for my body and to take occassional breaks from it if it stops working. I cannot imagine a neuro scolding you for not taking MORE of this drug. It is a powerful stimulant.

Unfortunately for me, Provigil just isn't working for me anymore. Now, we are talking about maybe trying an ADHD type of med like Adderall depending on what the neuropsych testing reveals.

I hope you get through to this neuro and that he sees your point in this. I hope this is just the office staff being a bunch of morons and that it doesn't really reflect him.
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Dx: CNS Demyelinating Disease (2005)

Take me back to days full of monkeyshines
Bouncin' on a bubble full of trouble in the summer sun
Keep your raft from the riverboat
Fiction over fact always has my vote
And wrinkles only go where the smiles have been...

Jimmy Buffett from "Barefoot Children in the Rain"


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"Thanks for this!" says:
ewizabeth (10-20-2008), tovaxin_lab_rat (10-20-2008)