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Old 10-20-2008, 03:46 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Hi Joe!
Sorry to hear about your rashy stuff! Your neuro may have you pretreat with Benadryl and tylenol before infusion now.

I have had pinpoint itching during infusion for awhile now. It doesn't get worse, there's no physical evidence, no further signs or symptoms involved. I am trying to get to the bottom of it during infusion. I noticed that the mixture in the IV bag seemed to be separating towards the end of infusion , so last month we rotated the bag a few times and no itchies.

Have you posted this on the Tysabri thread? Maybe you will get a response from someone who is now or has been on Ty and has had these symptoms.

I hope it works out for you! Please let us know how it comes out!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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