Hi Cherie,
No the infusion center won't do anything without the docs orders, and Yes basically i am saying that I have all the numbness without the pain, the hand numbness came on about 3 weeks ago and has gotten steadily worse, and when I tilt my head DOWN I get buzzing and can feel it all the way to my finger tips.
Also just about 2 months ago I would have , what I call, attacks when my arms go VERY weak on me, at first it was both arms doing this, then it started that one arm would do it, then the next time the OTHER arm would do it and it would alternate and go frm one to the next, with sometimes BOTH again at the same time. The "attacks" as I call them would last about 10 to 30 minutes each time they happened. I DO have lesions on C-3, C-8 and T-1, the neuro at first thought it was the lesions then she said she was not positive cause the symtoms were esculating and went from one side to the next. They said it was not normal for MS and they suspected a slipping disc, I had a neck only MRI on Friday and then the TY reaction on Monday. I called the neuro today because I need some answers NOW, the upper "trunk" area numbness started again also about 2-3 weeks ago and it is ALL gettin steadily worse, still no pain or if there is it is very MILD ache in my right wrist. The numbness is driving me batty......
Oh and of course I still have the pancreas cyst going on and I see a surgeon on Nov 3rd.............I am getting sick of being bounced around frm one doc to the next with NO results..........NOT to mention both my arms hurt and are black and blue from missed IV's and missed MRI Dye injections...........I am getting sick of all these issues all at once........AND the weather is getting COLD up here and I get seasonal depression also........
i have filed for long term disability and I am not even sure my neuro is supportive with that......I am NOT happy with the way my body, my mind OR my life is being handled right now......
it is hard for me to type with numb fingers and hands and that is why i have not kept you updated, for this I am sorry Cherie.
You have been such good support through all this and I feel I have let you down.......sorry...
Joe
Quote:
Originally Posted by lady_express_44
So, your infusion center doesn't give out Benadryl to all patients before the treatment then?
Since you've already had a reaction, I think I'd be asking for it BEFORE the next time. Maybe that will be enough to ward off future reactions . . .
My concern is always escalating reactions to allergens, which seems to happen for me. I can be fine using something, even for a long time, but once I have that first reaction, the second one is usually worse. Of course I hope that is not the case for you, but like I said, please make sure they are watching over you well next time. 
When you say back to square one, and that you are numb from the chest to the waist . . . are you saying you are back to where you were three months ago? But no pain? How long have you been numb again? When did the hand numbness come on?
It is possible this is a disc problem TOO (I keep trying to convince my doc & neuro that that is all my problem is  ), and I guess the reason I am hoping that is true for you is because you don't have the pain this time. That is a tell-tale TM symptom . . . but I know people who have had disc problems that don't get that same "hug" or swollen feeling pain like we do. They usually have like an ache that follows along the nerve, from the disc down the arm, etc.
I would sure be glad for you if this was a disc problem, because at least you can fix this (usually) with serious PT therapy. My ex had a disc problem and it took about 6 months of intense therapy (EVERY DAY for several hours), but he has very little problems from it now and a very strenuous job.
Didn't they see lesions in your C-spine?
You described a TM attack as well as anyone I've ever run across, so I really think that's what you had. It is possible that this is something different . . . but I'd like to hear more about what's been going on lately . . .
Cherie |