Sally,

Here is the list I gave to my neuro. You may want to write everything down so you won't forget it!

1. Extreme fatigue
2. Eye pain - double vision, eyes will not focus, drift off
3. Impaired speech - sound deaf or drunk
4. Problems swallowing - food gets stuck and comes back up or goes down the wrong way and causes wheezing
5. Hands stiffen up and won't work
6. Really weak - getting worse
7. Problems chewing
8. Coordination problems - my son calls me his "wobbly" mom
9. Weight loss (25 lbs.) due to swallowing
10. Cannot write
11. Cannot drive

Mestinon really helped me, but it was not enough! I had to get on steroids before I was able to eat and drink again!

Hang in there!
Erin