Thread: Tysabri Information & Check In
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Old 10-22-2008, 05:36 PM
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Join Date: May 2007
Location: Heah!
Posts: 2,921
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Quote:
Originally Posted by JoeMac View Post
Hi All,

I went for infusion #2 today and after a few UNsuccesful tries they FINALLY got a vein to use on me, they sugessted I get a port........Duh, that is what I wanted from the start......BUT after the whole dose of Ty went in I developed a slight red blotchyness on my arms and stomach.......they gave me IV benedryl and took a vile of blood from me to check for antibodies.

I would think that I should be OK for Tysabri in the future because it was such a slight reaction BUT the blood work will tell the story won't it? if I stay on it or not....Is this kind of a COMMON thing?

This is IT for me as far a the CRAB drugs go, I have tried them all, ty is my last hope........

Has anyone else had this problem?

Thanks

Joe
Hey Joe!

I got to thinking after I responded to your post on the MS board.

Transient reactions have been noted in people who start Tysabri., with a lot of them calming after 4-6 infusions.

If your blood test comes back positive for antibodies, your neuro may keep you on Tysabri for the next few months and check them again, as long as you aren't having full blown allergic reactions. That's why a lot of them use the benadryl/tylenol protocol. They aren't having anyone take more than 25-50 mg. of benadryl. The usual is 25 mg, more of a calming dose, to stop the histamines from ramping up.

I'll see if I can find the info on this for you. I have it stored somewhere, but I am off to work and don't have time to search right now>
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diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
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