So you do have ptosis? Well, I'm not a Dr., but that is kind of a "tell tale" sign of MG, as well as the weakness............
This disease CAN be controlled! If you read up on MG, it is awful, but MS and other diseases can be much worse..........In fact, my hubby's friend (who is an ENT) said that if I had to have an autoimmune disease, then MG is the one to have. You may only have to take Mestinon. Even if you have to take steroids, you'll feel SO much better that you probably won't mind
! I know they have been a God send for me!
They call MG the "snowflake" disease cuz' everyone has different symptoms, etc,.
Do you have kids? Do you have a support group? I know that this site is truly amazing and that you will make many new friends!
Memory CAN be affected by MG. I know that my memery isn't as sharp as it once was, but have no real complaints so long as I am on my meds.
I work part time and have a son and hubby who need me to be well and for the most part I am! Just remember to try and take it easy! Don't push yourself when you are tired - just take to your bed. You'll feel much better after that!
Take care
Erin
Quote:
Originally Posted by lilsalliann
thank you so much for you replies and welcolmes!
my nuero has had me scheduled for lots of test. she suspects mg, family doc suspects ms. i have been this week to ent test, eeg test, bloodwork (the place where i went said they dont test for musk ab i would to go hosp ital for that). i have an mri, mri w contrast, mra and spect scan.also mri of spine due to neck pain. i have ptosis and i am extremely weak, mostly in my legs. i dont have trouble swallowing or weakness in hands. my arms do get very weak. ia am sooo tired . today all i did was go to the grocery store for like 3 things and now my legs hurt so bad and i am so tired.yes this condition (if i have it is very fightening). i sympathize with all of you. i dont know what is going on with me but i hope they find the answer soon. i need to feel like myself again. is brain fog a part of thnis because i really feel like i cant concentrate?
thanks again everyone you all seem so kind
sally
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