Quote:
Originally Posted by JoeMac
Hi Cherie,
No the infusion center won't do anything without the docs orders, and Yes basically i am saying that I have all the numbness without the pain, the hand numbness came on about 3 weeks ago and has gotten steadily worse, and when I tilt my head DOWN I get buzzing and can feel it all the way to my finger tips.
Also just about 2 months ago I would have , what I call, attacks when my arms go VERY weak on me, at first it was both arms doing this, then it started that one arm would do it, then the next time the OTHER arm would do it and it would alternate and go frm one to the next, with sometimes BOTH again at the same time. The "attacks" as I call them would last about 10 to 30 minutes each time they happened. I DO have lesions on C-3, C-8 and T-1, the neuro at first thought it was the lesions then she said she was not positive cause the symtoms were esculating and went from one side to the next. They said it was not normal for MS and they suspected a slipping disc, I had a neck only MRI on Friday and then the TY reaction on Monday. I called the neuro today because I need some answers NOW, the upper "trunk" area numbness started again also about 2-3 weeks ago and it is ALL gettin steadily worse, still no pain or if there is it is very MILD ache in my right wrist. The numbness is driving me batty......
Oh and of course I still have the pancreas cyst going on and I see a surgeon on Nov 3rd.............I am getting sick of being bounced around frm one doc to the next with NO results..........NOT to mention both my arms hurt and are black and blue from missed IV's and missed MRI Dye injections...........I am getting sick of all these issues all at once........AND the weather is getting COLD up here and I get seasonal depression also........
i have filed for long term disability and I am not even sure my neuro is supportive with that......I am NOT happy with the way my body, my mind OR my life is being handled right now......
it is hard for me to type with numb fingers and hands and that is why i have not kept you updated, for this I am sorry Cherie.
You have been such good support through all this and I feel I have let you down.......sorry...
Joe
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Your doc is fully aware of your (slight) allergic reaction the last time then? Since so many pre-medicate with Benadryl, and you've already had one reaction, I think I'd ask him if it is worthwhile to PRE-medicate...
Sounds like l'hirmittes (zapping while bending your neck), which can happen due to MS lesions, or many spinal injuries.
I don't know what to say about all your new symptoms, Joe.
I definitely think it is worthwhile that they investigate the potential disc problem, and your doctor has made a good point about it being unusual for MS to swap sides like that. A pinched/bulging nerve does seem to fit in that regard . . .
If the pain came on (not the toothache type pain that comes from many spinal injuries...) like the neurological pain you had before . . . then I would think this is the lesion flaring up again. "No pain" has me thinking that it's not the MS flaring up.
My hands are "permanently" numb, since my last spinal lesion flare. Heat, positions, stress . . . a lot of things affect "how" numb they are, but they are always numb to some degree. When I have an attack though, they HURT, feel swollen/like encased in cement, some fingers don't work at all (not just numb, but totally uncoordinated, etc.). Are you having any of those symptoms . . . or just numbness?
I think you have a VERY astute doctor, Joe, that she has picked up on what might be subtle differences between "usual" MS spinal lesion symptoms, vs another problem in the spine. I know you have lost your patience for the run-around, but her investigation seems very worthwhile to me.
I get SAD too, but it doesn't hit me till Feb every year. Are you on A/D's . . . or do you get light therapy for your SAD?
I know your frustration with other medical issues at the same time as the MS . . . I am going through the same still. Fortunately I have a very high tolerance to pain, so I have taken a "testing/poking/prodding holiday", until I get then energy to deal with everything again.
If you can live with some of the things going on, just kick back and DO NOTHING about things for a while. It's good for the soul.
What makes you think your neuro isn't overly supportive of LTD? This is a very important factor, so I hope you get him on board!
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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