Hi Cherie,
Thanks for the reply,
NOW I am nervous, more than before. My neuro called I do NOT have any discs slipping in my neck BUT the lesion did get bigger, not active but bigger and that is what is causing my issues, she is waiting on blood work to come back and said if I have antibodies I will have to stop the TY, if not I could continue and pre-medicate with Benedryl so all is resting with the antibody test. She said if that comes back positive that we will have to get "creative" in our treatment.......I am just about OUT of options. We might have to try IVIG next.
She did say they received my SSDI paperwork and she is on my side there and they will do what they can to get me on it...
...If I continue on ANY kind of IV treatment I will get the "Port-a-cath" because my arms are ALL hurting and black and blue from IV misses and missed dye injections
I am scared about all of this, I will just HAVE to not worry though and see how it all plays out, probably the best news was that I won't need operated on yet with the disc but the worst news is the lesion is bigger........But very little pain......it is funny how you mention toothache pain, I DO have that and have an appt with my dentist to fix that because some of my teeth DO need work....
As for the cyst, I will wait on that also.........there is a "Plan" for me and my recovery and I refuse to get in a tizzy about all this.........my seasonal depression is controlled right NOW with zanex and that is helping.......But if I COULD just relax and get approved for SSDI, I will take COBRA insurance and let the rest fall into place....
I have STD until Jan 17 and also have insurance until then. After that I am the one that has to be "creatiive"..
Thanks for your help Cherie, how many times have I said THAT.....LOL
Joe
Quote:
Originally Posted by lady_express_44
Your doc is fully aware of your (slight) allergic reaction the last time then? Since so many pre-medicate with Benadryl, and you've already had one reaction, I think I'd ask him if it is worthwhile to PRE-medicate...
Sounds like l'hirmittes (zapping while bending your neck), which can happen due to MS lesions, or many spinal injuries.
I don't know what to say about all your new symptoms, Joe.  I definitely think it is worthwhile that they investigate the potential disc problem, and your doctor has made a good point about it being unusual for MS to swap sides like that. A pinched/bulging nerve does seem to fit in that regard . . .
If the pain came on (not the toothache type pain that comes from many spinal injuries...) like the neurological pain you had before . . . then I would think this is the lesion flaring up again. "No pain" has me thinking that it's not the MS flaring up.
My hands are "permanently" numb, since my last spinal lesion flare. Heat, positions, stress . . . a lot of things affect "how" numb they are, but they are always numb to some degree. When I have an attack though, they HURT, feel swollen/like encased in cement, some fingers don't work at all (not just numb, but totally uncoordinated, etc.). Are you having any of those symptoms . . . or just numbness?
I think you have a VERY astute doctor, Joe, that she has picked up on what might be subtle differences between "usual" MS spinal lesion symptoms, vs another problem in the spine. I know you have lost your patience for the run-around, but her investigation seems very worthwhile to me.
I get SAD too, but it doesn't hit me till Feb every year. Are you on A/D's . . . or do you get light therapy for your SAD?
I know your frustration with other medical issues at the same time as the MS . . . I am going through the same still. Fortunately I have a very high tolerance to pain, so I have taken a "testing/poking/prodding holiday", until I get then energy to deal with everything again.
If you can live with some of the things going on, just kick back and DO NOTHING about things for a while. It's good for the soul.
What makes you think your neuro isn't overly supportive of LTD? This is a very important factor, so I hope you get him on board! 
Cherie |