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lady_express_44 · 10-23-2008, 09:55 AM

Quote:

Originally Posted by JoeMac

Hi Cherie,

Thanks for the reply,

NOW I am nervous, more than before. My neuro called I do NOT have any discs slipping in my neck BUT the lesion did get bigger, not active but bigger and that is what is causing my issues, she is waiting on blood work to come back and said if I have antibodies I will have to stop the TY, if not I could continue and pre-medicate with Benedryl so all is resting with the antibody test. She said if that comes back positive that we will have to get "creative" in our treatment.......I am just about OUT of options. We might have to try IVIG next.

She did say they received my SSDI paperwork and she is on my side there and they will do what they can to get me on it...

...If I continue on ANY kind of IV treatment I will get the "Port-a-cath" because my arms are ALL hurting and black and blue from IV misses and missed dye injections

I am scared about all of this, I will just HAVE to not worry though and see how it all plays out, probably the best news was that I won't need operated on yet with the disc but the worst news is the lesion is bigger........But very little pain......it is funny how you mention toothache pain, I DO have that and have an appt with my dentist to fix that because some of my teeth DO need work....

As for the cyst, I will wait on that also.........there is a "Plan" for me and my recovery and I refuse to get in a tizzy about all this.........my seasonal depression is controlled right NOW with zanex and that is helping.......But if I COULD just relax and get approved for SSDI, I will take COBRA insurance and let the rest fall into place....

I have STD until Jan 17 and also have insurance until then. After that I am the one that has to be "creatiive"..

Thanks for your help Cherie, how many times have I said THAT.....LOL

Joe

Joe, FIRST AND FOREMOST, get your teeth fixed!!!

Your neuro might not say anything about the importance of this, but I know first-hand how infection can cause our spinal lesions to be a problem.

I had "inflammation" in my tooth for all of 2007, and for whatever reason, did not connect "inflammation" with "infection". I struggled many months with my spinal lesions (never had a MRI, but they were definitely acting up), and I finally noticed the only time I felt ok was when I was on antibiotics. I was on antibiotics a fair amount, because I guess the infection in my tooth was causing me to get all sorts of infections in my body, and I needed antibiotics for one thing or another several times.

I finally grabbed the bull by the horns and had my tooth pulled. It was a molar, with a cap, and I guess the roots were rotting underneath because they had to be removed by a specialist who took them out in small pieces. I was none the wiser because it was under a beautiful looking cap (that just kept getting "inflammed").

Within DAYS, literally, all the spinal lesion problems STOPPED, and most of the symptoms went away.

GET YOUR TEETH FIXED, PLEASE!!! In the meantime, if you have infection, get on antibiotics!

I am glad you are not "apparently" in a flare though. Unfortunately, the "effectiveness" of most of the drugs we take seems to be measured by "new" or "enhancing" lesions . . . but that is obviously not the whole picture (maybe not even the important part) when it comes to this disease process. One good thing about having such a "relapse" and "lesion measurement" effective drug as Tysabri is that I think they are finally going to figure out that managing flares (apparent inflammation/enhancement) is not going to change disability progression much in the long run . . . then they can start looking at WHAT does need to be managed in order to affect our demise.

GET YOUR TEETH FIXED!!

Cherie