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Old 10-23-2008, 11:18 AM
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lady_express_44 lady_express_44 is offline
Grand Magnate
 
Join Date: Aug 2006
Location: Vancouver, Canada
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15 yr Member
lady_express_44 lady_express_44 is offline
Grand Magnate
lady_express_44's Avatar
 
Join Date: Aug 2006
Location: Vancouver, Canada
Posts: 3,300
15 yr Member
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Ok, now I can talk to your other points. I didn't want to take away from the importance of dealing with your teeth in my last posting.

(I'm curious to see if antibiotics take the edge off your symptoms, or if they stop things from escalating for at least the 10 days you are on them ...)

Did you have your last (prior) MRI at the beginning of the TM attack, in the middle, or towards the end? I didn't have mine till I was almost finished the 2nd attack (that's the only MRI I've ever had actually), and by that point it was partially healed. I have no idea how much it changed from start to finish, but it may be that your lesion was just starting out when you had your other MRI. So, to me, it would stand to reason that it appears bigger now (after going through the TM attack).

It is my understanding:

"Gadolinium is not necessary when only the spinal cord is examined.
Contrary to the brain there will only rarely be enhancement in the cord."

http://www.radiologyassistant.nl/en/4556dea65db62

So . . . if there is generally no enhancement visible in the spinal cord lesions, how does she know it is not "active"? I'd be very interested in the answer to that question (if you think to ask her) because I've often wondered what they use as an assessment of spinal lesion "activity" (if they don't usually enhance) ... except new symptoms and/or enlargement . . .???

I'm glad to hear your neuro is on-board for SSDI. You definitely have a great case for it, but you NEED your neuro's full endorsement on that too.

Like someone else said (RW?), antibodies can fluctuate in the first few months on Tysabri. The fact that you had an allergic reaction is reason to test you for antibodies, and to keep a close eye on you during the next infusion . . . but I would have thought they'd let you keep trying to see if things change (especially since your choices are so limited).

Your cyst isn't infected in any way, is it? I don't really know much about all that, but when I was reading about my adrenal "shadows", I read that they could get infected (hmmm ... or maybe that was my gallbladder problem ...?). Anyway, you want to avoid infection . . . but if the cysts are not causing you problems, I'd be inclined to let that problem slide for a while. Even surgery (anesthetic) throws me for a loop these years, so I'm putting my surgery off as long as possible. Good thing I have a high tolerance to pain.

Glad you are going to be dealing with your teeth ASAP.

Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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