I don't know when it's time to give up and go on disability?
I have really aggressive case of PN. Over the last three months it has progressed from the balls of my feet up to my knees. Now it is in my hands and shoulders. My neurologist and I are communicating almost daily via email and trying to adjust my medication to deal with the pain.

I am currently using a cane.

I get up and shower, by the time I've dried my hair and dressed, I'm tired. I rest on the 30 minute drive to work, then I hit my desk and suck down my one cup of coffee. As long as I don't have to leave my desk, I can tolerate the pain until lunch, where I go out to my minivan and take an hour and a half nap. Then it's back inside for another four hours of work. I work at a computer, so walking is not a problem. It's just that the medication is making it hard for me to remember and stay focused. The pain is NOT being controlled by the medication, only "dulled" by it enough to function.

Three years ago I ran five miles a day, graduated from college while raising two teenage daughters by myself and working full time. I was a whirlwind of energy. Now I feel like a slug that is working uphill against the wind!

When I get home from work I go to bed. I don't cook, I don't clean, I do one to two loads of my own laundry a week. My children are totally independent. They drive to the grocery store, they do all the chores and cooking. I have to choose to either work, or be a mom. Right now I have to work to pay the rent.

Sorry for the Novel, but it's all happening so fast and I'm scared!
Terri