Welcome Mark, You have been through so much! I've had RSD for 12 years now, I feel like a young child in comparison. We are glad you are back in touch. I know you have had lots of ups and downs like all of us regardless of time. I'm also grateful for music, candles, flowers, swimming, the beauty of plants, lakes, the softness of my furry cat and her purring. My husband that is so good to me and we can talk about anything. Our daughter and son in law are so good to us too. Our daughter and myself were born and raised in Oregon. We moved here 10 years ago for her college education. She is a court reporter and surprisingly has done depo on rsd brought on by surgery. That's what happened to me, the very next day. Of course, I didn't know it for 4-5 years. I ended up going back to Oregon and was diagnosed in less than a minute. Have a great Dr now. I know what you mean by all of us are different in how we react to different treatments. So you are getting good treatment and have a good Dr.? I have a great Dr. but he is moving in 2 years. I'll start hunting with his help. We live in Arizona now and there is a great neurological hospital here, Barrow's= that's where I hope to find my new Dr. Oregon is a beautiful state isn't it. We miss the coast. We lived close to a lake and enjoyed water skiing. And of course Mt Batchelor near Bend, was our favorite place to snow ski. We have so many great memories there. It took me a long time to work thru adjusting to the physical pain and depression. I also have fibro. I think reading and writing on this site has helped me a lot. I am grateful for so many things instead of being sad of what I can't do any longer. Our son in law became a commercial pilot and they moved to Chicago a little more than a year ago. They hope to move back within the next year. Our daughter flies in every two weeks and works 2-3 days. They have been married 8 years now. How did you get RSD?? I was only 2 years out of high school. We were married in 1967l
My Dr. changed my anti-depressant meds and now am on cymbalta and I feel better on it. Also after researching myself we switched from neurotin 3200 mg to Lyrica 300 mg.
I had to go so high on neurotin to stop all the jerks and electric shocks etc. My Dr. is a phychiatrist, neurologist, and pharmacologist, so he manages my meds and has helped me a lot with my head.
We get company from Oregon every year. They are so happy to get away from the rain, they usually come in April, May, and the fall. About 30 of them came for our daughters wedding.
You sound happy, despite your physical disability. I hope you can keep walking as long as possible. That is one of my fears, as I have full body, as I'm sure you do. I do dailey stretching and swimming exercises with my toes bending. Can do in tub also. Just very warm water and curling toes, that has kept them from curling in wrong direction.
Welcome again,and hope you keep writing us and let us know how you are getting along. I'm sorry, but what is PAD? Take care, Loretta