Hi Cherie,
Yes they compared this MRI to the one I originally had at the beggining of the relapse, the thing that gets ME is that these symptoms went AWAY and now are back again with a slight twist, more numbness and less pain.......
Now to the pancreas, I have a surgeon set up for Nov 3rd appt, i am working on that at the same time as this....
Now the TOOTH, I have been on an antibiotic now for 3 doses, i take it every 6 hours and have to get the tooth pulled on Monday, I'll let you know on the outcome of the antibiotics.........so FAR no difference.
That is what my neuro said about the lesion being bigger she said there is nothing to be alarmed about right NOW. i DO know that she does not mess with Tysabri protocol and she won't go beyond the recommendations, lets hope I don't have antibodies.......
My life is going in TOO many directions right now Cherie, I am TRYING to take things one at a time but it is difficult.....I have some support here but they are not with me ALL the time so on my "down" times it is frustratiing me...
I will definately let you know when I start to FEEL better, so far right NOW I don't. I have an ultrasound coming up on the ppancreas so we will just go from there.....antibiotics for the tooth, antibody test at the lab and SSDI application all sent in and waiting on the outcome, all I CAN do is wait...
I am doing all that I can right NOW so it is time to WAIT I guess.......
Thanks Cherie
Joe
Quote:
Originally Posted by lady_express_44
Ok, now I can talk to your other points. I didn't want to take away from the importance of dealing with your teeth in my last posting. 
(I'm curious to see if antibiotics take the edge off your symptoms, or if they stop things from escalating for at least the 10 days you are on them ...)
Did you have your last (prior) MRI at the beginning of the TM attack, in the middle, or towards the end? I didn't have mine till I was almost finished the 2nd attack (that's the only MRI I've ever had actually), and by that point it was partially healed. I have no idea how much it changed from start to finish, but it may be that your lesion was just starting out when you had your other MRI. So, to me, it would stand to reason that it appears bigger now (after going through the TM attack). 
It is my understanding:
"Gadolinium is not necessary when only the spinal cord is examined.
Contrary to the brain there will only rarely be enhancement in the cord."
http://www.radiologyassistant.nl/en/4556dea65db62
So . . . if there is generally no enhancement visible in the spinal cord lesions, how does she know it is not "active"? I'd be very interested in the answer to that question (if you think to ask her) because I've often wondered what they use as an assessment of spinal lesion "activity" (if they don't usually enhance) ... except new symptoms and/or enlargement . . .???
I'm glad to hear your neuro is on-board for SSDI. You definitely have a great case for it, but you NEED your neuro's full endorsement on that too.
Like someone else said (RW?), antibodies can fluctuate in the first few months on Tysabri. The fact that you had an allergic reaction is reason to test you for antibodies, and to keep a close eye on you during the next infusion . . . but I would have thought they'd let you keep trying to see if things change (especially since your choices are so limited).
Your cyst isn't infected in any way, is it? I don't really know much about all that, but when I was reading about my adrenal "shadows", I read that they could get infected (hmmm ... or maybe that was my gallbladder problem ...?). Anyway, you want to avoid infection . . . but if the cysts are not causing you problems, I'd be inclined to let that problem slide for a while. Even surgery (anesthetic) throws me for a loop these years, so I'm putting my surgery off as long as possible. Good thing I have a high tolerance to pain. 
Glad you are going to be dealing with your teeth ASAP.
Cherie |