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Senior Member
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Join Date: Jan 2008
Posts: 1,090
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Senior Member
Join Date: Jan 2008
Posts: 1,090
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I spoke with my previous infusion nurse yesterday. She called the house to see if everything was alright as she had not seen me in a couple of months for my Tysabri infusion.
The infusion center has many infusion offices located throughout the region and the nurse told me that so far 43 of the 48 Tysabri patients that the infusion center company has treated have quit Tysabri because of the infusion costs. That leaves only 5 Tysabri patients now.
It amazes me that 89% of the Tysabri patients have had to quit the medication due to infusion costs!!!!! 
Tysabri is a tremendous medication and it is being made useless because of infusion costs, not Tysabri costs.
I sure hope that things change in 2009 for the folks who are using Tysabri.
-Vic
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