Quote:
Originally Posted by Victor H
I spoke with my previous infusion nurse yesterday. She called the house to see if everything was alright as she had not seen me in a couple of months for my Tysabri infusion.
The infusion center has many infusion offices located throughout the region and the nurse told me that so far 43 of the 48 Tysabri patients that the infusion center company has treated have quit Tysabri because of the infusion costs. That leaves only 5 Tysabri patients now.
It amazes me that 89% of the Tysabri patients have had to quit the medication due to infusion costs!!!!! 
Tysabri is a tremendous medication and it is being made useless because of infusion costs, not Tysabri costs.
I sure hope that things change in 2009 for the folks who are using Tysabri.
-Vic
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Me too Vic!
I have Anthem BCBS of Maine. I am under an OLD plan where I have Major Medical and basic insurance, you know, the OLD insurance. Everything associated with my infusion costs is picked up by my major medical.
As I posted the other day, the cost of the drug being charged by the infusion center FAR outweighs what the infusion center charges for the actual infusion. I'm scrolling back here in the Tysabri forum to find out what the last increase in Tysabri cost was. If I have to hand carry my own Tysabri in I will, just to cut the infusion center's rip off.
I haven't heard from the specialist at BCBS after my talk with her the other day, but she is looking into what they are charging and how much it will cost by getting it through the ins. co. specialty pharm as opposed to the infusion center's supplier.
I forgot to tell you that the refund I am expecting is directly related to the "balance billing" thing you posted. They are going back to 1992 and they are going to refund me all the money I paid to any provider over what they paid after my deductible.
She said they would take it directly from the providers and refund it to me and deal with them on the overcharging. She said it was due to an error in how my plan was listed and that they were charging me as if every provider was out of network provider instead of a network provider, even though I don't have a network ( if they accept BCBS they are in network!)
I should be seeing a good chunk of change from this one!!
I told her I want an itemized list of every overcharge to compare to my own records.
I am going to go to bat here for the Tysabri users out there. The charges some of you are being charged for infusion itself are outrageous! I'll start making some noise and see what comes of it. If I need some voices I will let you all know!!