Quote:
Originally Posted by JoeMac
Hi Cherie,
Actually yesterday I did have more energy, I'll have to see about TODAY, I have neen on the antibiotics now for about 5 or 6 doses. I have been missing my middle of the night one because I sleep right through it because of my sleep med but first thing in the morning I take it...........You could be correct that this is not an all out TM attack again but it is similar without the pain, I get the tooth pulled on Monday, fun time ahead.......hahaha
Yes that is what my Neuro said about the lesion growth, it most likely grew BEFORE I got on the tysabri but the newer symptoms DID start after the ty.......yes I agree that the spine lesions are still doing something, that is obvious to me. I am not on LDN as of yet but I will bring it up to my PCP and we'll see what HE says........
When his tooth went bad could have been a few weeks ago and i never KNEW I should just get them ALL pulled out now to avoid this again........I don't have many left but the few I do have I would like to keep if possible, I'll see what my dentist thinks......
Right now, this morning I don't feel THAT good but who knows what the day will bring....
This numbness really IS driving me up a wall............
Thanks for the info Cherie, it is great to confirm things that i THINK are happening to me, you have taught me and helped me a LOT..... 
Joe |
In all honesty, Joe (and I think I mentioned this many weeks ago), I haven't heard that they feel Tysabri is specifically useful for spinal lesions. HOWEVER, if it works for controling brain lesion activity (which it seems to for many), then that can be 1/2 the battle anyway because many of us have them too.
How about taking your meds first thing, after lunch, and before bed? Not sure what hours you keep, but as long as you can spread them out to three times a day (every 6 hrs or so), that's what I've always done. I've never woken myself up to take meds, except fever-reducers. Which reminds me, keep an eye on your body temp as even ONE degree can make a difference. (That's how I usually figure out that I have infection, actually).
My dentist knows I have MS, yet he told me that I could hang onto my molar as long as I could put up with the pain. That's probably not a wise thing to say to someone who can tolerate a lot of pain, and who has spent tens of thousands of $ to do whatever I have to in order to hang onto the teeth I have.
(BTW, he's the head of the dental association here ... and even he didn't realize the repercussions-sp).
When I went for my physical with my doc, it never occurred to me to tell him about my tooth. It wasn't until I saw my neuro and doc the next time (after getting it pulled) that I brought up that I had hung onto that tooth. It was then that they told me I shouldn't have.
I didn't want to let that tooth go, and I regret it every time I bite down and catch my tongue. I have so many caps and bridges, I've never been without a tooth . . . and I am not adapting well to the change.
My spinal lesions like it much better though.
Getting them all pulled is one option, especially if they are not in good shape and you don't have many anyway. The main teeth they tell us to hang onto are the molars (for chewing), but it's possible that's mostly what you've lost already...? Depending on what it will cost to hang onto what you have left, I might decide to get them all pulled too . . . but if it's not too expensive, how about just getting any decay taken care of instead.
Here is a link to a good brochure on relapses from infection:
http://www.mswatch.ca/ContentRoot/Ed...ry/Relapse.pdf
The numbness won't likely let up for some time, but hopefully you won't feel quite so rotten when the tooth is not stirring things up for you so much.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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