I know what you mean. Sometimes I'll tell my sister how bad I feel (over the phone) and then when I actually see her she tells me I "look fine". We don't see each other that often as she lives in VA so it stands to reason that the times I do see her I'm doing okay and not having any drastic sxs. Sometimes I wonder if people think I'm faking it!! I don't want to appear disabled when I see her....but I hate feeling like I'm always being "sized up".

I don't think anyone understands the fatigue we have, though. I can't even find words to explain it to others. They just say "yeah, I get tired, too".