Hi Cherie,
I thought about getting ALL the teeth pulled, for NOW I am getting the one pulled and then having the others fixed.....I will keep an eye n the others very closely and if they give me problems I will get rid of them.....
I have worked out a system to get all 4 doses of the antibiotic in me for the day, I do feel a little better now, its hard to tell but I'd have to say yes I do FEEL a LITTLE better but the attack is still making me very numb, and like I said before, no pain but a lot more numbness and l'hermittes but I increased my Neurotnin and it is helping with the lhermittes and tingling (just not the numbness) the pancreas i still giving me just a TINGE of problems, I have an ultrasound on Nov 6th and the surgeon appt on Nov 3rd, I don't know WHY I don't have those appts switched around but I will finally get to MEET this surgeon so I am keeping it this way, then when I get the ultrasound and the gastro doc sees is the cyst got bigger or not then the surgeon can do what he feels a need to do, (drain it or not)........
SO, ehe dentist delayed my tooth being pulled by a day because of an emergency..
My plan...
1. Get the tooth pulled 10/28
2. See the cyst surgeon. 11/3
3. Get ultrasound for cyst. 11/6
4 See my PCP. 11/7
I will be waiting out the antibody test on the Tysabri n the meantime and then after All this plays out I can move forward from there.
I can't worry yet, just taking things one day at a time, one week at a time and suffering through it all, (what more can I do?)
The thing that is getting to me the worse during this waiting period is the numbness that came back to my whole body, mostly UPPER body and arms and hands.
Cherie, you wouldn't believe how much your interaction with me has helped, you tell me things that I would have never THOUGHT about, you CONFIRM things that I HAVE thought about and you WARN me about thngs that are in my horizon.....
Thanks SO much.
I have not been on the boards for a couple days because i have been trying to keep busy to keep my MIND off of all this, I also have a lot of support here and I have been hanging out with those people to help me deal with it all....
How log do you think this numbness will last this time, last time it was at LEAST a month or maybe 2, I forgot already....
Thanks again
Joe
Quote:
Originally Posted by lady_express_44
In all honesty, Joe (and I think I mentioned this many weeks ago), I haven't heard that they feel Tysabri is specifically useful for spinal lesions. HOWEVER, if it works for controling brain lesion activity (which it seems to for many), then that can be 1/2 the battle anyway because many of us have them too. 
How about taking your meds first thing, after lunch, and before bed? Not sure what hours you keep, but as long as you can spread them out to three times a day (every 6 hrs or so), that's what I've always done. I've never woken myself up to take meds, except fever-reducers. Which reminds me, keep an eye on your body temp as even ONE degree can make a difference. (That's how I usually figure out that I have infection, actually).
My dentist knows I have MS, yet he told me that I could hang onto my molar as long as I could put up with the pain. That's probably not a wise thing to say to someone who can tolerate a lot of pain, and who has spent tens of thousands of $ to do whatever I have to in order to hang onto the teeth I have. (BTW, he's the head of the dental association here ... and even he didn't realize the repercussions-sp).
When I went for my physical with my doc, it never occurred to me to tell him about my tooth. It wasn't until I saw my neuro and doc the next time (after getting it pulled) that I brought up that I had hung onto that tooth. It was then that they told me I shouldn't have.
I didn't want to let that tooth go, and I regret it every time I bite down and catch my tongue. I have so many caps and bridges, I've never been without a tooth . . . and I am not adapting well to the change.  My spinal lesions like it much better though. 
Getting them all pulled is one option, especially if they are not in good shape and you don't have many anyway. The main teeth they tell us to hang onto are the molars (for chewing), but it's possible that's mostly what you've lost already...? Depending on what it will cost to hang onto what you have left, I might decide to get them all pulled too . . . but if it's not too expensive, how about just getting any decay taken care of instead. 
Here is a link to a good brochure on relapses from infection:
http://www.mswatch.ca/ContentRoot/Ed...ry/Relapse.pdf
The numbness won't likely let up for some time, but hopefully you won't feel quite so rotten when the tooth is not stirring things up for you so much.
Cherie |