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lady_express_44 · 10-27-2008, 11:09 AM

Quote:

Originally Posted by JoeMac

Hi Cherie,

I thought about getting ALL the teeth pulled, for NOW I am getting the one pulled and then having the others fixed.....I will keep an eye n the others very closely and if they give me problems I will get rid of them.....

I have worked out a system to get all 4 doses of the antibiotic in me for the day, I do feel a little better now, its hard to tell but I'd have to say yes I do FEEL a LITTLE better but the attack is still making me very numb, and like I said before, no pain but a lot more numbness and l'hermittes but I increased my Neurotnin and it is helping with the lhermittes and tingling (just not the numbness) the pancreas i still giving me just a TINGE of problems, I have an ultrasound on Nov 6th and the surgeon appt on Nov 3rd, I don't know WHY I don't have those appts switched around but I will finally get to MEET this surgeon so I am keeping it this way, then when I get the ultrasound and the gastro doc sees is the cyst got bigger or not then the surgeon can do what he feels a need to do, (drain it or not)........

SO, ehe dentist delayed my tooth being pulled by a day because of an emergency..

My plan...

1. Get the tooth pulled 10/28
2. See the cyst surgeon. 11/3
3. Get ultrasound for cyst. 11/6
4 See my PCP. 11/7

I will be waiting out the antibody test on the Tysabri n the meantime and then after All this plays out I can move forward from there.

I can't worry yet, just taking things one day at a time, one week at a time and suffering through it all, (what more can I do?)

The thing that is getting to me the worse during this waiting period is the numbness that came back to my whole body, mostly UPPER body and arms and hands.

Cherie, you wouldn't believe how much your interaction with me has helped, you tell me things that I would have never THOUGHT about, you CONFIRM things that I HAVE thought about and you WARN me about thngs that are in my horizon.....

Thanks SO much.
I have not been on the boards for a couple days because i have been trying to keep busy to keep my MIND off of all this, I also have a lot of support here and I have been hanging out with those people to help me deal with it all....

How log do you think this numbness will last this time, last time it was at LEAST a month or maybe 2, I forgot already....

Thanks again

Joe

I'm glad you are going to hang onto your teeth and keep a close eye on them. Just remember, "inflammation" means "infection", so if your gums ever swell ...

Sounds like you are all lined up for everything that needs to be taken care of. What I didn't see was when you plan to get the port put in, and when the next Tysabri infusion is. Have they not done the antibody test yet? How long do the results take? I'd hope that you wouldn't have to go past your 4 weeks before you get your next Tysabri infusion, as doing so seems to cause some people difficulty (from what I've heard, even the 4th week before the next scheduled infusion can be difficult for some...).

The numbness is annoying, and can make accomplishing some things very difficult. It sounds like this is sensory nerves only though (not motory), so I'm glad about that. As far as how long it takes to heal, I've had two different experiences in this regard. The first two times I went through the 4 - 6 weeks of escalation, then 4 - 6 weeks of healing. Whatever went numb first, tended to heal first, so I guess about 6 weeks for any one body part to recover (no matter how big that area was). In those instances, my feet started first . . . and they were un-numb at about 6 weeks, however the rest of my body numbness had come on during that first 6 weeks . . . so then I waited another 6 weeks for those areas to heal.

It was different though, when the numbness was due to the ongoing infection (ie. not a "real" exacerbation, but psuedo). My recovery might have had something to do with using LDN, or it could be that I kept the disease process somewhat "in check" by using antibiotics most of that year. I had ongoing escalation, and ongoing recovery (all year). . . but once that tooth was gone, most of the numbness let up in about 3 weeks.

Either way, you are about 3 weeks into this now, so chances are the numbness will start to let up 3 weeks after the tooth is removed. That's my best "guess".

Joe, you don't need to thank me.

That's what we are here for.

Cherie