Hi Kat and welcome to NeuroTalk! Wow, you've really been through the ringer with doctors and specialists. I'd have to agree with you that some of them lack professionalism for sure!
I've posted the PN forum link in case you haven't visited there yet. I'm so glad you joined.....there are lots of very caring and supportive people here!
http://neurotalk.psychcentral.com/forum20.html