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Old 10-29-2008, 09:38 AM
Victor H Victor H is offline
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Join Date: Jan 2008
Posts: 1,090
15 yr Member
Victor H Victor H is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,090
15 yr Member
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Quote:
Originally Posted by Natalie8 View Post
Well, it looks like I may have my first UTI since being diagnosed with MS. I'm on Tysabri and have had 4 doses. I have had UTI's over the years off and on, before the MS diagnosis, when I sometimes had sex (common for some women). But I have some questions:

Is anyone out there on Tysabri who gets UTI's after their infusions? I know it is listed as a side effect.

I ignored it for awhile because I haven't had one in over a year and for some bizarre reason I just thought it was the MS causing urinary hesitancy, and urinating many times a day since I hadn't had sex. I thought maybe I had a new symptom of MS. But then it occured to me that it might be a UTI since my urine was cloudy and I had pain coming and going. Anyhow, I have Nitrofurantoin that my primary care doc. had given me a year plus ago to take after having intercourse to prevent UTIs. I have started taking it now. I've been on it for 2 days. The UTI doesn't seem to be clearing up as fast as it did in the past. It does seem some what better but it is still not really gone. I am urinating normally but the pain/pressure is still there.

Should I wait a few more days to see if it completely clears up?
Could this be because my immune system is lowered from the Tysabri?
Is this antibiotic too mild for the kind of UTI's that people with MS get?

I called the neuro and they said come in and give a urine specimen. I'm worried, though, since I've been on antibiotics that the bacteria may not pick up in the sample. I guess I should just go give the urine sample, right? And then see what it says? It's just annoying because I have to drive a ways to get to the lab.
1) Yes, I have used Tysabri when dealing with a UTI, but only when the neurologist approved the procedure at the infusion center.

2) Using Cirpo, my UTI's have lasted just a few days.

3) Yes, UTI's are more common when using Tysabri because of the limitations Tysabri places on your immune system. That is why you need to talk to the doc in advance of your next infusion and why it needs to be treated ASAP.

4) For UTI's, I am a huuuge fan of Cipro. If the Nitrofurantoin does not work, then maybe you can change to Cipro.

Let us know how it goes.

-Vic

Last edited by Victor H; 10-29-2008 at 12:37 PM.
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