OK second time, lost the first before either of you posted but agreed that motor symptoms are the first priority. I've had it for 20 yrs and I need to be able to swallow. I don't like it when I fall. And boann, you said it right when you said others don't understand. They can make us look good with med, but truth is, I NEVER feel good, no matter how good I may look to others.

We need #2, more and better treatments. I take only sinemet and amantadine. It takes a lot of sinemet, but I'm not dyskinetic. I get dyskinetic when I add agonists, comtan, or CR. Amantadine works with sinemet for me. So meds to control the side effects of sinemet would be ok I guess, but I certainly would not put it as a priority over finding a better treatment.

Non-motorsymptoms are especially useful in looking for biomarkers, or to help find a cause; also to help others understand our behaviors. But nothing should take priority over finding the best treatment or cure.