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Old 09-08-2006, 07:25 AM
Busymommie Busymommie is offline
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Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
15 yr Member
Busymommie Busymommie is offline
Member
 
Join Date: Aug 2006
Location: Winston-Salem, NC
Posts: 116
15 yr Member
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Riley was until two days ago on 350mg a day. She did have appetite issues for a short time at about 300mg a day but it subsided within a couple of weeks.

Topamax was a last choice for Rileys neuro, only after she had been on and discontinued several (6 I think) other AEDs due to either them not helping, or the side effects being to bad to continue.

She has tolerated it really well, until the last increase side effects would not go away even after waiting about 6 weeks but overall Topamax has been the best AED for her, she has been on it longer than any other AED. I have my fingers crossed that now with the addition on Keppra things will slow down a bit.
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Denae- Mom to
Riley (9)- Lennox Gastaut Syndrome & Charcot- Marie-Tooth
Brittany (11) a Prissy Princess
Sarah (14) Aspergers Syndrome
Victoria (16) Above Average Teenage sister
Jade (11) my niece, but now also my baby
Jacob (6) Possible Aspergers, but we have to sort through his anger/abandonment issues first
Jackson (4) The sweetest little guy you will ever meet.
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