Thread: Any shakiness?
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Old 10-31-2008, 11:49 AM
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erinhermes erinhermes is offline
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Location: San Antonio
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erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Default Yes! Yes! Yes!

My muscles do the exact same thing! Even when I smile too long, my lips start to twitch and shake! Granted, most of my symptoms have gone away now that I'm on 'roids, but they do that sometimes!

Before I was diagnosed even a gallon of milk was too much for me! Before my thymectomy I was trying to hang very small paintings in my dining room and my muscles simply couldn't handle even that. It was really scary!

Try to remember to not overdo it! If you feel tired, REST! This isn't something you can work through, as I learned the hard way (ICU for starters)

I am not trying to be a downer. I am just trying to make sure you know to rest when you can! Please take good care of yourself!

You may want to try and get into your dr's office b/4 the holidays (if it is at all possible) just to make sure you don't have a crisis - not fun!

Hang in there!
Erin
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