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Old 10-31-2008, 11:54 AM
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Location: Utah
Posts: 122
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Quote:
Originally Posted by lady_express_44 View Post
It seems to work differently for everyone, Brenda . . . just like all the meds.

Everything about this disease is basically "theory" at this point. They don't know what causes it, or why some of us respond to some meds, and others don't. They don't know if we all have the same disease, and they don't know why a person with one "apparent" lesion is totally disabled, and another person with 100 lesions is doing fine. All of the current meds we used are based one of many "theories", but so far none of those drugs have proven to make a lot of difference for the majority of people in the long run.

Cherie
This is probably the main reason for my frustration...and I am new to expressing it. I suppose I trusted the doctor a little bit too much and never asked these questions originally.

I appreciate all of you sharing, because it is helping me sort out how I feel about it.

Can you answer another question for me?

What side effects, if any, do you experience with the LDN?

This is the least talked about on the websites, perhaps because there aren't any side effects to worry about? I am more hesitant these days and don't want to be a guinea pig.
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Brenda
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Dx with RRMS 2/05
Avonex 3/05
LDN 11/08
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