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Old 10-31-2008, 08:16 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Natalie,

Sorry to hear you are going through this!

My advice about your Tysabri infusion is the same as everyone else's. Tell the nurses what you have been through and the results. Have your doc fax the results over. The infusion center will talk to your neuro and he will have the final say.

Don't take chances with your health for your infusion. You can have it later if nothing is wrong. Get whatever is going on diagnosed and cleared up. It may be neurogenic bladder. It may be something else entirely. Figure out what it is and don't worry about being a few days late on the infusion. Worry about your kidneys first.

Peeing is a BIG DEAL!
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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"Thanks for this!" says:
Natalie8 (11-01-2008), SandyC (10-31-2008)