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Old 11-01-2008, 04:22 PM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
Riverwild Riverwild is offline
Magnate
Riverwild's Avatar
 
Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Flygirl is correct. Hold them to every step of the TOUCH protocol. Remind them that it's required.

I had one nurse who didn't ask the questions. I reminded her that it is MY health that they are protecting, along with their certification. She makes sure she does every step now when she walks into my infusion room, and I watch her like a hawk when she is the starter nurse.

I am not even allowed to leave the infusion room until my hour of observation is up. I sit right there and wait, no matter what. I had a neuro appointment one time and it was halfway through the observation hour and the nurse called the neuro and told him if he wanted to see me at 3:30 he would have to come to the infusion room because she was not letting me leave...

He changed my appt. to 4 PM.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
Natalie8 (11-01-2008), SandyC (11-02-2008), tovaxin_lab_rat (11-01-2008)