Quote:
Originally Posted by mollymcn
I think the seizures are not related to SCS, but are part of RSD and the general failure of the central nervous system. They are not "real" seizures -- they don't show up on an MRI -- but they sure do act like them. One doctor told us that it's critical to drink some juice immediately afterwards to get the blood sugar stabilized (as much as it's ever stabilized with RSD!)
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This year , year 5 for me I have had 5 major seizures. Mine could be from the coma, I had alot of problems and was intubated for 35 days after developing pnemonia, i almost died. so I may have developed epilespy. We also often have sleep paralysis due to our inability to get accurate sleep this too causes seizures. you need a ecp I think it is called . they do not often show on mri. good luck i know they are terrrifying.cz