Just thinking here...- this just popped into my head as I was reading

Can you send a copy of your post to MJF foundation??
Maybe they can get something happening for her??
It's worth a try - right?
unless someone has a better suggestion

A couple of our RSD members wrote their senators for help with getting approval of denied meds, and they got good results. That might be an option too.

Hugs & Good thoughts for both of you