Hello beenthere and welcome to NeuroTalk. I think you've gotten some really great responses to your intro, so I'm really glad you found us. The only thing I will add is that I have Fibro (among other things) and there are days that I can't even stand a heavy shirt or jacket on my shoulders. Fibro is so unpredictable and painful.
Maybe another Dr would see things in a different light for you. It's nice to meet you.