Thread: Any shakiness?
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Old 11-03-2008, 09:13 AM
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erinhermes erinhermes is offline
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Location: San Antonio
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erinhermes erinhermes is offline
Senior Member
erinhermes's Avatar
 
Join Date: Jul 2008
Location: San Antonio
Posts: 1,471
15 yr Member
Default Hey Maurice!

How are you feeling today? I see my doc in a few hours for another round of blood work - yuck!

I wonder why my neuro doesn't test me the same way - I'll have to ask him when I see him next..........

It may be the steroids that have your appetite going so strong, cuz' even @ 20 I was ravenous. I also had more strength, so I miss it! When I was @ 80, I was a MAD woman! TRuly mad! I was eating 5000 calories a day (but only gained 16 lbs) and was manic, and had terrible panic attacks - YUCK!

How long have you been diagnosed with MG? I'm still a newbie and find every bit of info very helpful, so thank you!

Take care and let me know how you are when you get some time!
Erin

Quote:
Originally Posted by neutro View Post
Erin, I didn't answer your question on the possible effects of Cellcept:
My appetite is strong, even too strong but that may be due to the steroïds (20 mg/day)…
The only MG symptom left is a weakness in the legs, arms are now fully O.K. but that was the reverse at the beginning (very weak arms and legs OK), the switch occured after 5 months of treatment, when the streroïds (and Cellcept?) started to act.
Maurice.
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