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In Remembrance
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Join Date: Aug 2006
Posts: 3,772
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In Remembrance
Join Date: Aug 2006
Posts: 3,772
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Laura and Steve-
I wish I had a bright idea, but all I can offer is a shot in the dark. A couple of weeks ago I wrote about what a difference a cheap potassium supplement made to me. "Lurching" would have been an admissible adjective. And finding myself helpless on the floor would not have been unthinkable. Since your life has been hell for so long, I doubt that your nutrition has been much better. So, just on the chance that it is a factor, you might try it. If you are like me, you'll know in a day. Good luck.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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