Thread: Limbo-Land
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Old 11-03-2008, 06:29 PM
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
dmplaura dmplaura is offline
Magnate
dmplaura's Avatar
 
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Welcome Coffeegirl. Girl after my own heart. Love the coffee! Mmm!

I couldn't help but responding with more than the typical 'welcome' when I saw all the talk of migraines.... do you know how long I walked around in pain dismissing my symptoms as migraine? I honestly thought they were! Until things got worse...

eye twitching (the neurologist told me this was due to anxiety)
numbness/tingling-fingers/hand/arm/feet/face
burning/itchy/pins/needle feeling with extreme hot/cold
headaches- which ended up being migraines
pain-face/inner ear/jaw/hand
losing ability to write, poor penmenship
fatigue in middle of day for no apparent reason

Ok, I took your list, and all of the above mentioned I suffer with, and more! I had 2 'hallmark' MS symptoms (L'Hermittes and MS Hug, or girdle banding) that my neuro was able to mark as my 2 isolated neurological symptoms isolated from other cause. My MRI and spinal both came back as positives for MS, however my case of MS is almost 100% sensory (no motor/cognitive problems... at least not to a degree that I've noticed or been affected as such).

Without the hallmark symptoms mentioned, I got the same type of brush off from my first neuro. Once the MRI came in, they took it seriously. I hope you find out it's not MS, however if it does end up being MS.. I do hope you find a neuro that you can trust and knows what they're doing
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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