I wonder if anyone can help one of my fellow Ozzie MSers who has appealed to me for information. Here's the letter that she sent, and as I don't have the right answers for her, I'm wondering if anyone has any words of wisdom that might help her.


For years, even before my diagnosis (diagnosed Oct 18th 07) I have been suffering from tummy pain/wind - probable IBS, but not officially diagnosed.

I did Boot camp in 2005 and hurt myself, and then went to physio. Whatever he did caused sciatica - disc bulges x 2. After the 1st disc bulge I tried pilates but too embarrassed to continue that when I developed flatulence and loss of control.

I have noticed since being diagnosed that I don't have very good bowel control and it is distressing. I have tried many medications and seen a physio about pelvic floor exercises.

I went off Prozac thinking this did something but it made no difference. Somedays it feels like everything would fall out. Maybe twice per week if that, I get the normal urge to go but I really need to run.

I can't go the gym sometimes due to embarrassment. I have tried going off different foods but this hasn't made any difference, although certain foods do stir things up.

I am even researching any operations that could fix the problem as I am not going to go through life putting up with this.

My mother says it is nerve damage and my neurologist has referred me to an continence advisory nurse. I have even tried laxatives but these cause accidents.

Do you know of anyone that has the same problem, and if so what have they done to ease it?