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Originally Posted by lady_express_44
That would likely be spasticity, which may or may not be related to the LDN. Sometimes LDN causes transient increased spasticity for the first few weeks (or even months) that you are adjusting to it (or a new dosage), or perhaps you may eventually determine the dosage is too high for you.
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Your response confirmed what I thought might be happening. I started at 3.5 then went to 4.0, and dropped back down to 3.5 because of spasms. I'll have to determine if it's LDN being too high or spasticity I'll have to live with.
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Staying in a certain position (like when you are sleeping), also seems to add to my spasticity. Try a 15 min nightly stretching routine; just simple exercises like foot rolls, touching your toes, etc. People prone to spasticity/spasms should do this on a regular basis anyone, but I have found myself slacking off this last year. Every time I start back up for a week or two though, the cramping stops
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I do stretch before going to bed; but I do admit, not for 15 minutes. I'll try doing it longer.
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Do you find the "excess" tingling/numbness mostly lets up after you've been up for 10 - 15 minutes? If so, try sleeping in a different position, or losing/gaining a pillow or two. I have to keep my back and neck completely straight to mostly avoid that sensation when I wake, and I get it when I sit a certain way in my recliner too. It always lets up quickly though, once I am not longer in the "trigger" position.
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You are absolutely right about sleeping positions. I have found I have to sleep on my back and keep my left leg perfectly straight to alleviate the pre-charley horse spasms. It's difficult to sleep any other way with your left leg straight.
I'm trying though.
Your advice and remedies are always appreciated. You are a wealth of info.
