Hi Cherie,
Good news is I have NO antibodies to the Tysabri and can continue with the infusions with a few things to pre-medicate with, (Benedryl and Pepcid). Kind of bad news is that I may not be able to get the PORT before the 17th which is my next infusion, I hope that is not the case and I can get it soon......She did say I probably have some imflamation of all the lesions again that was triggered from the infected tooth making me feel like I was back in the original relapse....
Also good news is that she talked to the pancreas surgeon and I CAN have the surgery, but she also said that it COULD trigger another relapse but is not sure and said we will deal with THAT if it comes......One thing I haven't told you yet is on Monday the surgeon said I don't have a "cyst" on my pancreas, it is a "Mass" that has been growing for a number of years and he wants to remove about a quarter of my pancreas, (near the bottom quarter)......I do feel a bit better in my "cog fog" but that is about it and I think I attribute that to the Tysabri. SO in conclusion, I have to take care of the pancreas and can continue the Tysabri and my SSDI is also in the works........I feel good about all things now and for the time being all is going as hoped and prayed for.....
Thanks Cherie, I will keep you posted on things...
Joe
Quote:
Originally Posted by JoeMac
hi Cherie,
The tooth and socket went fine, I finished off the antibiotics and have had some really good cog fog days and feeling good but the arm issues and the "trunk" numbness is still here along with my hands being numb, I guess THAT stuff will take longer to resolve..........Now I will shift over to the pancreas cyst, I have an appointment with the doc at 1:00 today, I want it DRAINED because it has been giving me trouble......we'll see what HE says, I have not even MET the guy yet, I might not even LIKE him...........  I still have NOT heard about the antibody test, I will call the neuro's office today if they do not call me....
My doc increased my neurontin to help with the arm troubles and it has seemed to help a little with the duration of these attacks it DOES work.......wow, I didn't have aby faith in that drug before but now I know it works...
Joe |