I read your reply to the question about LDN and something you said stuck out. I was just diagnosed last Friday and now we are trying to figure out how long I have actually had this. I was also Dx with Graves disease back in 99.
You were talking about lifestyle and dietary changes, and you mentioned something about cutting out dairy. Does this help?
Obviously me being new at this has led to many questions for my next appointment which is on Monday, and one of the biggest questions was what I can do to make it better.
The stress part is never going away it seems between working full time, going to school part time and being a mom. But I have had a really really bad week and I have noticed that I wake up in the morning in so much pain that I am forcing myself to take a day off tomorrow. It is my birthday and I refuse to go to work!
My neuro is a wonderful person who is a little more personally vested as his sister has progressive MS. HE is recommending Rebif, but we have not gone over all of my medical history including the bipolar/anxiety issues I have had on and off for years. He did tell me there is a drug in pill form that is in the final stages of FDA testing and would hopefully be on the market in the next 2 to 3 years that has been shown to reduce relapses by over 60% could this be LDN?
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Originally Posted by lady_express_44
Hi Brenda, and welcome to NT.
I have had MS for sure since 1991, and probably a lot earlier . . . I liked denial. 
There were no meds available when I first found out, so I didn't see the point in dwelling on what "might" be in my future. By the time I was knocked into reality, I had had the disease a long time, and was still doing ok (compared to many who had it for much less time, and/or were on the meds), so I didn't see the point in changing what I was doing in a big way.
I had reduced my stress level (got out of Mgmt), tried to eat better/exercise more, cut out dairy, AVOIDED/treated the first sign of INFECTION (to the best of my ability), etc. That might have helped to keep me relatively stable, and even now my neuro says there is no drug on the market that is proven specifically helpful for spinal lesions (which are my main issue).
I was basically left to my own devices, and found people talking about LDN. My doc was not keen on rxing it, but after a big fight where I threatened to get it off the internet from Mexico, he finally gave in. I've been on LDN (alone) for about 3 1/2 yrs now.
LDN has been a miracle drug for me ... BUT it does not save me from myself. It is still very important to not push ourselves too hard (as tempting as it is at times), and to TREAT infection immediately.
My recommendation is for people to try Copaxone with LDN ... for double protection. Sometimes people can't handle one or the other, in which case you have no choice . . . but if you have the choice, why not do "everything that you can"? I would suggest you adapt to ONE drug first though (for at least 3 months), and then try to introduce the other.
Cherie |