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Old 11-06-2008, 07:26 AM
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Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
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15 yr Member
Riverwild Riverwild is offline
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Join Date: May 2007
Location: Heah!
Posts: 2,921
15 yr Member
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Quote:
Originally Posted by Natalie8 View Post
Hi RW,

The fever lasts no more than 2 days and it is very low grade (99.1 or 99.2). Out of 5 infusions I have gotten it 4 times. But my normal temp is usually 98.2 so I notice I feel crappier when it's a degree higher. I just take naproxen. Actually, I haven't told the neuro about it. I probably should. I haven't mentioned it I guess because it doesn't last that long and I had problems with low grade fevers for so long in the 1 1/2 years before I got diagnosed with MS and even after getting diagnosed. I had a bad case of mono for almost 9 months a year before the MS and I'm not sure I really recovered. So the neuro knew all about the fever problem -- I had been seeing a rheumatologist in the beginning too. But ironically, the continuing fevers (for days at a time and a higher temp) have actually gone away since I went on Tysabri!!! This has made me so happy because without the fevers I have felt a million times better. And it is a complete mystery to me why the Tysabri would make those annoying lingering fevers go away (they call it "fever of unknown origin").

Good luck with #20. I imagine you must take a nap in the infusion chair if you go in after working all night!
YUCK on the mono and being sick for so long!

I know I have something about this (fevers) in the studies and when I come across it in my files I will send it over.

I actually don't usually get a nap in the chair! Once I am awake, I am AWAKE, and just driving there and being exposed to actual daylight revs me up!

(i should be in bed right now!)
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I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


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I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
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"Thanks for this!" says:
ewizabeth (11-06-2008), Natalie8 (11-06-2008), Victor H (11-06-2008)