Quote:
Originally Posted by JoeMac
Hi Cherie,
Good news is I have NO antibodies to the Tysabri and can continue with the infusions with a few things to pre-medicate with, (Benedryl and Pepcid). Kind of bad news is that I may not be able to get the PORT before the 17th which is my next infusion, I hope that is not the case and I can get it soon......She did say I probably have some imflamation of all the lesions again that was triggered from the infected tooth making me feel like I was back in the original relapse....
Also good news is that she talked to the pancreas surgeon and I CAN have the surgery, but she also said that it COULD trigger another relapse but is not sure and said we will deal with THAT if it comes......One thing I haven't told you yet is on Monday the surgeon said I don't have a "cyst" on my pancreas, it is a "Mass" that has been growing for a number of years and he wants to remove about a quarter of my pancreas, (near the bottom quarter)......I do feel a bit better in my "cog fog" but that is about it and I think I attribute that to the Tysabri. SO in conclusion, I have to take care of the pancreas and can continue the Tysabri and my SSDI is also in the works........I feel good about all things now and for the time being all is going as hoped and prayed for..... 
Thanks Cherie, I will keep you posted on things...
Joe |
Sounds like good news almost all around, Joe. No antibodies, getting pre-treated with antihisitmines, a psuedo attack from the tooth (not a "real" attack) . . . and now you know that you are affected by infection the same as me and can be far more vigilant about that.
I hope they can get that port in before the next infusion too.
I have had 2 or 3 operations since the MS became a driving force in my life, and the only problem I've had is recovering from the anesthetic. Being a smoker, I used to be up and about within 15 min of any surgery, but now I find that I am too wiped out to care much. What used to take 2 or 3 days to recover from now takes a week . . . but I have never had a relapse. Since you and I seem to be on a similar path, I'd say you are going to be just fine. Just expect more recovery time ... but that's not too bad when we don't have to work.
Do we need our pancreas for anything . . . or is it like the gallbladder and tonsils that are not so necessary?
The cog fog should continue to improve over the coming months, at least if you follow the same pattern as I have. All up, it was about 18 months before I totally felt like "me" again . . . but the good news is that you shouldn't have to go through that type of TM attack again. Once is enough, eh?
(Just don't ignore infection cause it can lead to a full blown attack next time!!).
Glad to hear things are looking up for you.
Cherie
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I am not a Neurologist, Physician, Nurse, or Hairdresser ... but I have learned that it is not such a great idea to give oneself a haircut after three margaritas
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