Sorry about your pain and frustration. It's so annoying when doctors don't hear what you are saying. It sounds like you done enough research to have a good idea of what's up. My only advise is to be assertive and demand answers.

Before being dx'd with ms I was sent all over the place and told things that I knew were't true. I knew something was wrong with me but I couldn't make anyone believe me. I stayed with it for 2+ years and finally found a neuro who dx'd and helped me.

Pain is terrible. It takes away the joy of life. Keep doing the research and keep trying standard and alternative relief. There has to be something that can help. Positive healing vibe coming at you.