Originally Posted by jsrail

My SFN started in my feet a little over 3 years ago I guess and started moving into my hands about a year ago. Finally got dx a few months ago.

Anyway, about 4 months ago or so (my memory does not work so good anymore) it began, moving up my legs and arms and in my butt. In the last couple months it seems to have moved across most of my body, legs, arms, back, shoulders. Its like having a total body sunburn. Drying off my hands and body hurts, like drying off with a terry cloth towel when you have a sunburn. I am currently on 30mg of Methadone and 3600mg of Neurontin. This seems to cut about 70-80% of the pain and so far, makes life liveable. And no, I don't have a real sunburn! :-) lol I can start to feel the Methadone working slightly less, so I know at some point in the near future, my neuro doc will have to up the dosage on the Methadone. It has hardly any side effects to me other than constipation, which I treat with OTC stuff, no biggie there. And I get tired a couple times during the day. But driving and working 5-6 hours a day is no biggie usually.

My question is, is the sunburn feeling normal for SFN when it is effecting your arms, back and such? I am pretty medicated, so I don't actually know all how it would really feel once off all the meds (though I would guess very painful and debilitating), but is this the normal pain? I don't seem to get any tingling or electrical feeling on my back or on my arms and legs, just in my hands, feet, and butt. Also, do you get any itching on your skin? I have some and not sure if it has anything to do with my SFN or just the dry air here in AZ. I've never really had much skin itching in the past and I've lived in AZ for 15 years now.

Thanks in advance for any thoughts on this.

Jay