I must tell you, this is wonderful. I feel so much better since reading all of your supportive responses-this board rocks. I actually have never been one to use online boards or chat rooms. But, as all of you know, there isn't likely to be someone around you that can really understand this rare condition.
I have been reading a lot of what is on the boards and find this such a blessing. There is so much good information and wonderful support. You can see everyone going through the roller coaster ride together-sad, angry, frustrated, hopeful, etc. It really is an easier ride together, isn't it?
I will keep asking questions (maybe newbie ones) and reading up on the boards. Know that my prayer list has expanded greatly since "meeting" all of you.
Lori Lee