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Member
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Join Date: Jan 2008
Location: Southern California
Posts: 308
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Member
Join Date: Jan 2008
Location: Southern California
Posts: 308
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Hi Victor -
I remain saddened that you will be discontinuing Tysabri - despite your improved QOL. I'm also unsure as to what the heck your infusion center was charging you! My infusion center costs (here in the LA area) are less than 200$ - even before the insurance adjustment...that was what they billed the insurance company. That was their base charge! If your insurance company will pay the cost of the med - than it is possible for you to receive your infusions elsewhere? You don't live too far from where I am - 90 minute drive maybe? Would it be worth looking into? I'm still unsure of how the heck the treatments cost you so much money....with insurance covering some of it. I'm just plain confused. Full cost of Ty without insurance is around 2k (roughly?)....so even paying that fully - the costs shouldn't be nearly what you've had to spend. What was the infusion center charging you???
~Keri
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