Thread: Ooops!
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Old 11-09-2008, 01:33 AM
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dmplaura dmplaura is offline
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dmplaura dmplaura is offline
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
15 yr Member
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Quote:
Originally Posted by ewizabeth View Post
Anyway, I'm sorry your burning mouth has returned. Have you tried taking lysine? It completely controls the problem for me.
Isn't Lysine the one that's for cold sore treatment specifically? It's spelled like, L-Lysine or something odd in the drug store?

I have not tried that one if it's the one I'm thinking, because it was specifically for cold sores. It may be something to consider.

In other news, I got some sweet digital pictures of the insides of my cheeks if my dentist wants them for his 'collection' haha. What I thought was Oral Lichen Planus is definitely not OLP (as confirmed already). I got the French word they suspected (secretary said "leukodem"... to me sounds like leukoderm or leukoderma) but honestly I think it's a build up of keratin (if that's the right word?) from smoking that HOPEFULLY will fade over time.

I'm considering trying 2 techniques to see if either works. One involves taking large amounts of beta carotene supplements (which works for Leukoplakia apparently in some cases... although what I have in no way resembles leukoplakia either).

Imagine a series of almost completely side by side lines that run from top to bottom of my cheeks like extremely fine wires. It's wild! The dentists all said "Benign" but are still sending me to a specialist in Feb. 09. So I guess we'll find out more then? Unless I can clear these patches up myself through no smoking and beta carotene

Course... another option is oral lycopene for leukoplakia. Since these seem like treatments that I may be able to read about myself and try myself outside of doing the doctor dance, it's worth a shot either way. Especially in the case of beta carotene.

I think the pain is almost 100% related not to mouth lesions etc... but to the TN or ATN idea. Because.. head pain came back, and so did the mouth pain. Pop back a Clonazepam, head pain (burning) subsides, as does the mouth.

Go figure.

WALL OF TEXT HITS YOU FOR 10,000 damage!!!!
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2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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