Quote:
Originally Posted by RedPenguins
Hi Victor -
I remain saddened that you will be discontinuing Tysabri - despite your improved QOL. I'm also unsure as to what the heck your infusion center was charging you! My infusion center costs (here in the LA area) are less than 200$ - even before the insurance adjustment...that was what they billed the insurance company. That was their base charge! If your insurance company will pay the cost of the med - than it is possible for you to receive your infusions elsewhere? You don't live too far from where I am - 90 minute drive maybe? Would it be worth looking into? I'm still unsure of how the heck the treatments cost you so much money....with insurance covering some of it. I'm just plain confused. Full cost of Ty without insurance is around 2k (roughly?)....so even paying that fully - the costs shouldn't be nearly what you've had to spend. What was the infusion center charging you???
~Keri
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Keri,
I was/am caught between a rock and a hard place so to speak. My net worth is too high to qualify for assitance and my available cash is too low to pay for the infusion center costs.
I have a Major Risk Medical Insurance Graduate Plan through Anthem Blue Cross, wherein the deductable is insane and the out of pocket costs are equally insane. My PPO will not budge on the infusion center costs, and they are even worse if I go to an infusion center outside of those listed by my insurance plan.
There have been at least six people helping me with solving this issue (two neurologists, one attorney, one Patient Advocate, Biogen and Lauren) and we have all come up with the same numbers --- outlandish infusion center costs. Hence my new path to Rebif.
It is just one of those things that happens with a damaged healthcare system.
I will survive and press onward...
ON A MORE IMPORTANT NOTE:
How are you doing with your new treatment?
It sounds like a viable option for many folks.
Thanks for keeping us in the loop! I appreciate it.
-Vic